Lilly was diagnosed with ALL on May 1, 2014 and even cancer can’t keep her down. Her drive and determination has allowed her to go from not walking 4 months ago to running full force today. She is a fighter and the captain of her own battle squad named Lilly’s Battle Squad-Fighting Leukemia 1 Bad Guy at a Time! Lilly will be done with cancer treatment in T-minus 2 years and 4 months
My son Toby was diagnosed with DIPG on May 22nd 2008, 1 week shy of his 5th birthday. Toby was a bright little guy and so energetic. He went through 36 rounds of radiation and 2 clinical trials of chemo. Toby passed away on December 18th 2008 at 5 years old. Not 1 day goes by that we do not think of Toby. “I love you to the moon and back again”
My son was diagnosed at 11 yrs. old on 6-6-06 As u can imagine the worse day of our families life and to think what now and will I lose my child is someone nobody should have to go through. I thank god everyday he’s doing so well now he has a lot of issues still he had Avascular Neucrosis and had surgery in left shoulder and both knees a few times eventually the left knee he had something fake put in because if not he would to have a fake knee eventually so far it has worked but he still has pain especially when its cold out it really bothers him. He will end up with Arthritis at an early age we were told and all of this is because of the steroids ruined his joints an all during chemo treatment even had to stop steroids when it got so bad. He’s a Senior this year and will turn 17 this month and is one amazing kid after all he’s been through he never gives up on anything!! Very tough kid more so than I. He has siblings 2 sisters and a little brother as well. The date alone that he was diagnosed was awful he kept having bloody noses, bruising easliy, weak tired throwing up with lots of headaches and then a lump appeared on his neck i took him in and the next day got that horrible phone call that he needed to be admitted to Children’s hospital because he had a type of Cancer i was in shock didn’t want to believe it.. So if anything it’s made him such a strong kid an watching him grow since has been amazing and truly blessed he’s here today and just pray every time we go for check-up that he’s ok. God has been good.
Branden, was playing outside with friends, at the daycare March,19.2010. They were climbing the tree and jumping out of it! Normal boy stuff. Well he fell out of the tree and was hurt. Well I upset with him the boys were told to not be in the tree. So I called my dad to pick him up, so I could work still. (Signal mom of 2 no help had to work) after I was done working. I go to my dads house to get him. He told me that he was sleeping and that he got sick. So I called and after hours appt. Took him in told them what happened. He was taken to x-ray. The x-ray lady is looking at it and say oh my God. I was like what!! She looks us right back up stars. I was so scared at this point. Something inside of me just knew. The doctor comes in the room and tell a me it’s broken and that I need to go to children’s hospital right now. I felt my heart stop. I was crying I just new it was not good. They take us back to the room right away. (You! know its bad when you don’t wait) in comes ft, x-ray, and the doc. Talk about overwhelming a mom. The doc told me it was a tumor that eaten away the bone. They took him to have all kinds of test done!! My head was spinning with confusion and overwhelmed with what they had just said. I jump online and start looking up what it could be. Wow that was the wrong thing to do. They being him he has pain in him and is sleeping. I remember saying to God ” you brought him to my life when I was in high school to save me. Please don’t take him back. Then the doc came in told me that I would have to wait till the bone healed before the could tell me what kind it was. Following up with this doc on Monday. We did that she said that she couldn’t tell me if was a cancer tumor or not, but not to worry. I want to hit her in the face, not to worry this is my child your talking about not to worry are you out of your mind!! Well 6mtha of weekly doc visit. Its final surgery day. The take him back 2.5 very long hrs. The bring him back to me. She told me they had
Ayden was diagnosed with ALL when he was two and underwent three and a half years of chemotherapy treatment, several blood transfusions and a bacterial blood infection. He has been cancer free and off chemotherapy for three and a half years and is doing well. He loves football, hanging out with his friends and playing video games.
Blake was a normal, happy 3 year old, then we found out he had brain cancer. AT/RT. He was one of the 3 kids in Colorado that was diagnosed with that type of cancer in 2008. Three in Colorado, 35 across the country every year, most of which are aged 2 and under. Blake was 3, but they said his grapefruit-sized brain tumor had been growing for about a year, so he fit the criteria. He had turned 3 just two months before the cancer was discovered as it was. Blake fought hard for 16 months, before cancer claimed his life on April 27, 2009. No matter what treatment he was going through, he was a happy, smiley boy. In Blake’s own words that he would say each time his treatment was done, hands raised in the air, a huge smile on his face, “Blakey Free”.
On February 7, 2009, Annika underwent an emergency laparoscopic procedure to repair an intestinal problem called an intussusception. During the operation, which took place on her dad’s 50th birthday, surgeons realized the situation was more complicated and moved to a more involved surgery. They discovered and removed a tumor from her abdomen. The cancer was eventually diagnosed as Stage II Burkitt’s Lymphoma, but the prognosis was good. She required a short protocol of just two courses of chemotherapy and was able to have a PICC line instead of a port. Since any amount of chemo is hard on a body, Annika lost a lot of weight and all of her hair. She was unable to attend school for several months but, on May 20, 2009, Annika had her first clear scan! She continues to make regular trips to the Oncology clinic to check labs and for scans to be sure the cancer does not return, but she is learning to live life as a survivor! Miracles do happen!
Preston had been sick in early Feb with a bad cold and swollen neck so I brought him to the drs where he was treated with steroids and antibiotics. We all thought his neck would return to normal size. Roughly two weeks later his neck was getting larger so we saw my ENT who immediately CT scanned his neck and biopsied it. Within a few days we found out Preston had Stage 3A Hodgkins Lymphoma, with cancer in his neck, top left clavicle, liver and spleen. He immediately started ABV/COPP chemotherapy and completed 6 cycles over the course of 6 months. He’s finished just in time for his 6th birthday and to start his very first year of school. Proud doesn’t say or mean enough for how we feel about Preston. He’s truly our hero and warrior! He’s now 12 years old and on a mission to help other children still battling this dreadful disease.
I am originally David’s Grandmother, his Mother, Julie, was my daughter and she passed away march 9th 2009, 15 days before David’s 2nd birthday. We formally adopted David and his older brother, James, on David’s 3rd birthday. March 1st 2010 David developed a bad case of croup, was rushed by ambulance to the hospital, treated and released, by December 2011 he had had 32 confirmed cases of severe croup in which his airway completely collapsed and he needed racemic epinephrine to open his airway up to continue to breathe. I took him into his pulmonologist and explained that I have had 5 boys older than him and none of my children had ever had croup this many times but I couldn’t get anyone to listen to me, He looked at me and said “You have my full attention”. I told him I thought there was something else wrong, he agreed and suggested admitting him to the hospital to run some tests, 4 days later they were ready to send him home with still no answers and I begged them to do a cat scan of his neck, they agreed. At 3 am they came into his room and woke me and told me I needed to come look at his scans because they had found a tumor that was closing off his airway. They sent him to a larger hospital to have it removed confident that it was just a nerve tumor, nothing else. 5 days later we were packed and ready to go home when they called my husband and I out into the hall and said those 4 dreaded words no parent should ever have to hear, “Your son has cancer” When they removed the tumor they paralyzed David’s esophagus and right vocal chord, they had to place a feeding tube in his belly, they did 3 surgeries to try and repair his vocal chord, we spent a total of 4 months in the hospital at once as he underwent 8 different surgeries, he was released just days before his 5th birthday. This last year we have spent an additional 6 months in the hospital because of recurrent severe croup that will continue to be an issue until he’s 8 or 9. He missed 5 months of school last yr, which
After 3yrs of treatment and then a relapse, Alexandra underwent a bone marrow transplant Oct.5th 2011. A month later she developed a lung infection. Alexandra was in the PICU on a ventilator for 10 days but her body just grew tired of fighting. Surrounded by family Alexandra passed away Dec.6th 2011.
Taylor was a happy and healthy three year old until the last weekend of September in 2008. Over the next 4 days she would run fevers that hit 105, pass out, have flu-like symptoms and even told me “I think I need to go see the doctor”. After 2 urgent cares and 2 doctor visits later, we found ourselves in a hospital room and our pediatrician telling us, “You’re going to see a specialist, we think Taylor has leukemia.”
Within a week of diagnosis, we knew that she not only had a rare form of leukemia but that it was also chemo-resistant and that her chance of survival without a bone marrow transplant was in the 0-20% range. She underwent 4 rounds of chemo while we waited to find her a donor since we were not matches.
February 5th, 2009, Taylor underwent an unrelated umbilical cord transplant. She battled fiercely for the next several months nearly succumbing to the after effects of the BK virus due to having no immune system. She also fought against pneumonia, CMV, and septic shock. True to her fighter spirit, she never gave up and battled back with everything she had and WON!
Taylor is now 3.5 years out from transplant and has a 95-97% chance of never relapsing. While we will always have to watch for secondary cancers due to the chemos she received, she is currently in great health. She is now a 2nd grader at Martinez Elementary in Colorado Springs, CO where she runs on their cross country team. She loves to read. She also is very active in dance – she loves ballet, jazz, hip hop and she is competing on The Dance Center’s Dolls competition team for the 2nd year in a row. Her other loves include bike riding, stuffies, the color turquoise and tuna noodle casserole.
Aidan was diagnosed after 6 months of sie aches that the doctors pressed that there was nothing serious going on. At the age of 6 years old Aidan had a CT Scan at the ER and the doctors shocked us with the news that it was likely cancer. Aidan was diagonsed from his bone marrow a week later and the scans showed a 7 cm tumor on his right adernal wrapped around his aorta and vena cava and his bone scans lite up all over.
Aidan had 7 months of up front aggressive chemo, a 9 1/2 hour operation, radiation, Accutane, and 3F8 (anti-body therapy) for 1 1/2 years. He has been treated locally in San Diego and New York City, where he is still scanned every 3 months.
Aidan came off treatment in August 2011 and is stronger than ever and doing really well in 3rd grade.
On 11/14/2008, at age 16, Alex was diagnosed with Stage IV Aveolar Rhabdomyosarcoma, an aggressive cancer of the connective tissue. His primary tumor was in the bottom of his left foot, and spread to bone where he had tumors in his upper spine, lower spine, humerous bone on each shoulder, and sternum. The tumor in his upper spine collapsed his spine 2″, and he had endured two spinal fusion surgeries. Alex completed the 54-wk treatment in May 2010, and was in remission for 7 months until routine scans found a new tumor near his hip on 12/09/10. He underwent experimental treatment that was completed 4/21/11. Scans on 5/31/11 were clear of the Rhabdo. After completion of the experimental therapy, Alex’s bone marrow had had a tough time recovering. On 7/28/11, he was diagnosed with a secondary cancer (Acute Myeloid Leukemia) caused by treatment for his first cancer. It required aggressive chemotherapy and a bone marrow transplant to have any chance at a cure. Although his body was not strong enough for transplant, he never wanted to give up the fight. We enjoyed 13 more months of Alex in our lives, until his passing on August 21, 2012.
Liamh was diagnoised with HLH (Hemeophagocytic Lymphohistiocytosis) at 4 months old he went through numerous chemotherapy treatments followed by a bone marrow transplant to save his life he had his BMT at 10 months old and today he is a very active happy boy who will be 3 yrs old in November. He has a baby brother named Calum who also has this horrid disease but he was diagnosed in utero and went through Chemo and a Bone marrow transplant at only 8 weeks of age he is also doing amazing as well.
At 12 years old, I was the typical overactive, sporty, crazy wild child. Gymnastics, cheer, soccer, but at the time softball. I was the lead pitcher for my team 2 years running when I started feeling a slight pain in my left upper leg. Of coarse we figured it was a pulled muscle from over working it on the field. However the pain kept getting worse and worse until it came to our annual family vacation to NY. My leg was hurting so bad I couldn’t sleep, walk, run, or sit. It was horrible. When we got back my dad and I went to the doctor to get a set of x-rays done. I will never forget the moment she (my doctor) walked into the room and sat on the chair in front of me with the most dreadfully sorry look on her face. She told me that they had found a spot on my bone and she assumed it was a tumor. ASAP we went over to children’s to get a biopsy done of the spot, and unbelievably, it turned out to be a cancerous growth. After starting chemotherapy treatment almost immediately, I underwent the next 9 months of sickness, severe allergy to my medication, and days of no sleep. I ended my last chemotherapy in May of 2008. From 2007 till now I have had over several surgeries to replace the bone, and numerous rods. Now I am a healthy, colorful, crazy 20 year old 7 years cancer free…You will most likely see me and recognize the fun hair, crazy makeup, and wild personality.
In October of 2008 Chelbi had a hard time catching her breath. Took her to the dr. and they took a x-ray and found a Mass in her chest. We went to Childrens and could not figure out how to tell what it was because everytime chelbi laid down her oxygen level would drop. The gave her 4 days of radiation to shrink the mass and then gave her surgery to get as much of the mass out as possible and had a grape size peice of live tissue to biopsy and found out that it was a tumor based cancer called Estrosseous Ewings Sarcoma. Chelbi went through 27 weeks of Chemo and 5 weeks of Radiation. Chelbi has been in remission since Aug 2009
At 5 years of age Hope was diagnosed with High Risk, Stage 4, Neuroblastoma on April 3rd, 2007. Hope started treatment with in hours of being admitted to The Children’s Hospital of Denver. After six rounds of high dose chemo; stem cell harvest; 6 surgeries including a surgery to remover her tumor Hope was ready for her Bone Marrow Transplant. On September 4th 2007, she spent 24 days in Bone Marrow Transplant Unit, as the last patient in the “old” Children’s Hosiptal.Hope continued treatment over the next year receiving 12 cycles radiation, Hope then completed (6 rounds of CH 14.18 and 6 months of a take-home chemo). Her last treatment was May 18, 2008. We continue to scan every six months.
May 2010; Hope became a member of the HOPE Clinic (Helping Oncology Patients Excel).
Hope is in remission!
Thank you to all of our Caregivers, Nurses, Doctors, Friends and Family whom without this journey would have been unbearable. We Stand Faitnful and full of Hope!
On August 14, 2011 we celebrated Hope’s 10th Birthday, a true MIRACLE!
Hope loves the Miracle Party, she looks forward to it every year! She said will attend it for the rest of her life and she will one day take her children.
When I find out my older daughter have leukemia. It hurt me so bad, seem like someone hurting my heart. I have no family in Colorado but I am so glad that my working and children hospital help me a lot. Without them I don’t know what to do. I have four children. Since my older daughter sick I have to quick the job and stay home take care them. I ask for help from DHA Housing Author. I hope to know you guys more and we could talk more. Thank you for heard my story.
Our beautiful granddaughter, Nataly Grace, was diagnosed with LCH (Langerhan’s Cell Histiocytosis) on 6/18/09. It is a very rare blood disorder that only affects 1 in every 200,000 people. After several months of Dr. visits for pain, rashes, and fussiness, a biopsy determined she had the disease.
6/2010 – Update – Nataly’s LCH has now progressed to High Risk
Systematic LCH with fibrous bone marrow. She has started salvage treatment of Ara-C and 2CdA chemotherapies.
2/2011 update – Nataly completed 6 rounds of salvage treatment. This treatment was very hard on her and she spent 8 weeks in the hospital from June-August with fevers up to 105 for many, many days. She was on a pain pump for excruciating tummy pain with boluses every 30 minutes for over a month. It was so very hard to watch her withdraw from all of these meds. Nataly was completely blood and platelet dependent for several months while we waited for the treatment to kick her fibrous bone marrow into high gear!!
The salvage treatment saved sweet Nataly and she is now on maintenance protocol as of October 2010. She is making her own platelets and has not had a blood or platelet transfusion since mid-October! She will be on 2 oral chemo medications, prednisone, and 1 infused chemo for another year. We pray for complete and total healing for this beautiful baby who has changed our lives forever!
October 2011 – Nataly completed her 1 year of maintenance and had her last chemo infusion on 9/27/10, followed by surgery to remove her port on 10/5/2011! We are so blessed that our God has totally healed Nataly! We count our blessings every day and look forward to watching Nataly grow into a healthy, happy, beautiful little girl!
Siena was just 27 months old when she was diagnosed with acute Lymphoblastic Leukemia. She ended treatment on 6/9/13 with very few side effects. She’s now a thriving 1st grader who loves to sing, dance and play!
Siena is now in 3rd grade and is still suffering late effects of the chemo that saved her life. She will be having surgery due to those late effects on 9/15/17.
Jose was diagnosed at age 6 in the year of 2011 with Ependymoma through out his fight he has had 9 surgery’s but he still puts up a fight. Jose is a warrior he has had a very tough fight he is so strong he smiles and laughs and on top of his illness he still is a very caring person for others he is a person with beautiful feelings. And till this day he is still a fighter. Jose was diagnosed at age 6 in the year of 2011 with Ependymoma through out his fight he has had 9 surgery’s but he still puts up a fight. Jose is a warrior he has had a very tough fight he is so strong he smiles and laughs and on top of his illness he still is a very caring person for others he is a person with beautiful feelings. And till this day he is still a fighter.
Alexa was first diagnosed January 1, 2010 at the age of 2. She started having right side paralysis and headaches. Within that day and a half from diagnosis to surgery she went from being partially paralyzed to completely. She was diagnosed with Anaplastic Ependymoma(Brain Cancer). She had an 8 hour craniotomy, 31 rounds of radiation, and luckily did not have to do chemo. Since then Alexa has only had a few setbacks such as a pretty bad botched spinal tap which resulted in a back surgery. She had clean scans up until a couple months ago, and we go back in August 4th for her next scan to see if and how big the tumor has grown.