Chloe was diagnosed with Langerhans Cell Histiocytosis on May 11, 2010 at the age of 9 months. We were told that Chloe would need a years worth of Chemo and there would be alot of ups and downs. We would soon learn more than we wanted to know about this awful disease. Chloe had an ear infection that would not respond to antibiotics she then developed a fever that lasted daily for seven weeks. After multiple hospital stays an abdominal scan showed Chloe had 30+ lesions in her pelvis and upon further review of a brain mri it was discovered she had at least 2 lesions in her skull that had been overlooked. Chloe was born with histiocytosis but by the time it was discovered at nine months she had pelvis, upper leg, spleen, lung, ribs, sternum, arm, upper and lower jaw, and skull involvement. We started with vinblastine but Chloe did not respond so after 12 weeks she was switched to vincristine and ara-c. Chloe was unstable and made no progress on these chemo eithers. It was decided to switch Chloe to Cladribine, during this time Chloe developed Diabetes Insipidus. Diabetes Insipidus turned out to be a whole new ball game seperate from the Histio. Chloe ended up in ICU due to her sodium dumping. We were relieved when the news came that the Cladribine had worked and Chloe could be done Chemo. Although Chloe has been done Chemo for a year now she has been left with DI, body temperature regulation issues and CNS damage that has yet to have the extent of the damage determined. Chloe is an amazing, strong little girl that is doing great and we are so grateful, she is a true inspiration for everything she has endured and conquered in her short life time. I know God has great plans for her and we are proud to be part of her life. She has taught us all a lesson.
- Our Heroes
- 2019 Party