Conner is 4 with Ewings Sarcoma. Conner is an Air Force Military Child. Conner loves sports, his siblings & being a Wylie Bulldog. He loves going to the football games, watching his sister play soccer, & playing with his brother.
Conner is a super sweet, often soft spoken, funny, 4 year old (turned 5 in July). He says the funniest things, probably because his sister is 17 and brother is 19. Conner was very much our “miracle” baby to start with. My husband and I are High School sweethearts. We got married at 18, had first born at 21, second born at 23. We thought we were done, my husband had a “V”. Fast forward a few years and we didn’t feel “complete”. 10.5 years after the “V” my husband had a reversal. It was a success and within 2 months I was pregnant with Conner. Conner is our family’s blessing. Conner has taught the older two what true unconditional love is.
Happy to report on 12/6/13 Conner received his last round of chemo! HOPEFULLY FOREVER!
In these 9 months, 3 weeks since diagnosis Conner has endured a Bone Marrow Aspirate, a Biopsy, 3 surgeries (port placement, tumor biopsy/removal, & tumor resection/chest reconstruction), has gone under general anesthesia 7 times, 75 days of Chemo, 156 doses of the 6 different chemotherapy medicines – Vincristine, Topotecan, Cyclophosphomide, Ifosfamide, Etoposide, & Doxorubicin. 67 days being connected to IV fluids 24/7, 107 Clinic Visits, 42 CHoC visits, 7,874 miles driven for care, 14 times being neutropenic, 10 pain meds (morphine, oxycodone, valium and such), 92 Pokes (Blood draws, Port Accesses, Shots, Arterial lines, and IV’s), 1 Chest Tube, 24 Scans – (CT, PET, Bone, ECHO, EKG, MRI, Xray), 17 neulasta shots, 11 Blood Transfusions, 4 Platelet transfusions, 4 unexpected trips to the ER, 4 fevers that required a trip to the hospital, 26 Overnight hospital stays, 1 night in the PICU, an ambulance ride, and a care-flight helicopter.