Derek was diagnosed at the age of 1. When he was diagnosed none of the doctors were familiar with desmoid fibramotosis. He was the 4th child diagnosed. We decided to take matters into our own hands and reach out to St Jude’s where they were just starting to research it. He was approved to go to St Jude’ but we did not want to leave our family for 2 years during this time. We had his mediport put in and he started chemo that same day here at Children’s Hospital. We were so fortunate to get to work with Dr Brian Greffe. Derek was in treatment for 2 1/2 years, and had many surgeries. He still has regular MRIs to watch the tumor. Derek was chosen to have his story shared with millions with the Desmoid Tumor Research Foundation. He is the most resilient person I have ever met. Nothing can get him down.