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Sunday, 15 July 2018 / Published in Miracle Children

Henry Heckenberg – Hemolytic Anemia

We had quite the journey. Henry was brought into the hospital showing signs of jaundice and fatigue four days before his second birthday. We were whisked away to ICU and encountered a 30 day hospital stay, where there were several running diagnosis. Henry had 14 blood transfusions and it was discovered he has a very rare IgA antibody that was destroying his red blood cells. Henry showed signs of kidney failure and was not responding to the majority of treatments. He has a diagnosis of Auto Immune Hemolytic Anemia. Doctors feel this is a chronic genetic condition, but we have yet to discover the genes that are “bad”. He was treated with a variety of treatments, but at the moment the Rituximab seems to be controlling the IgA antibody.

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