Madelyn was diagnosed in September 2010 with neuroblastoma. She was 2 years old. During her treatment we found that she wasn’t entirely responding to treatment. We then had to travel to San Francisco for a clinical trial. This treatment put her in a room by herself and we could only take care of her basic needs. That treatment ‘was MIBG therapy. It worked really well. She still had one spot. She did another trial in San Francisco. That medicine Madelyn called yucky medicine. So we traveled between Colorado and Denver for almost a year. That spot just wouldn’t go away. She then did 20 rounds of traditional radiation. The spot was still there. It was then decided to do a second abdominal surgery. Once the spot was pulled out she was finally declared NED in January 2013. To help keep her that way she did compassionate use antibodies with accutane. That was a 6 month treatment. She then did a trial with vorinostat and accutane for 12 months. That trial ended for her in July 2014. She has now been off treatment for 1 year.