Simon was diagnosed with severe aplastic anemia one month before his 11th birthday. He later developed PNH and recieved a bone marrow transplant at 13. 11.5 months later, he developed Evan’s Syndrome. It was a long journey, but he is now 7.5 years out from original diagnosis, 5 years out from transplant, and 4 years out from the ES diagnosis. He is off all medications and living a “normal” life! We are truly blessed.
